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WELCOME TO THE ALS ASSOCIATION
MINNESOTA CHAPTER! | |
We Are A Local Organization With National Support!
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| Former MN Twins baseball player, Kent Hrbek and his wife, Jeanie. |
The ALS Association is the only not-for-profit voluntary health organization dedicated solely to the fight against ALS.
The Minnesota Chapter was incorporated in 1993 when patients, families and related professionals banded together to share in their struggle with this tragic disease and to provide patient services, commnity education and support of national research. Kent Hrbek, former Minnesota Twins baseball player, and his wife, Jeanie are two of the Minnesota Chapter founders and continue to loyally support us.
Our website offers a lot of information. We welcome you to browse through the many topics, but we never want to forget our main focus - people dealing with the stages of ALS. If you are a person with ALS (PALS) or a caregiver, family member of friend of a person with ALS please go to Patient Services/Local Services to find out how The Minnesota Chapter can help. Please don't hesitate to contact us at any time.
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| A Diverse Research Portfolio: The ALS Association Research Program Takes a Multi-pronged Approach to Speed Therapy Development
By Richard Robinson
The ALS Association hopes to make promising new therapies available to ALS patients by leveraging novel technologies and fostering collaboration across complementary fields. In its role as a leader in ALS research, The Association manages a diverse project portfolio through several different granting processes. All grants are peer-reviewed and are of the highest scientific relevance to ALS.nbsp;
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MINNESOTA CHAPTER SPOTLIGHT! | |
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ALS AWARENESS MONTH
IS A TIME FOR
2008 NATIONAL ALS ADVOCACY DAY AND PUBLIC POLICY CONFERENCE
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2007 Delegates in Washington, DC with Senetor Coleman |
The 2008 National ALS Advocacy Day and Public Policy Conference, which will take place in Washington, DC May 11-13, 2008. Please visit our Advocacy Day webpage for detailed schedule of events for this year’s conference and a recap of 2007 ALS Advocacy Day and Public Policy Conference.
The impact that Advocacy Day has had is evident. Advocates have more than just raised awareness of the disease in the halls of Congress. They have fought for and passed significant legislation that not only benefits the lives of PALS and families today, but also those whose fight has not yet begun.
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The ALS Association has: more than quadrupled annual federal funding for ALS research from $15 million to more than $60 million in 2007 alone -
Enacted legislation to waive the 24-month Medicare waiting period for people disabled with ALS the only time Congress has waived the waiting period since it was first implemented -
Established a presumptive disability ruling to ensure PALS have timely access to Social Security benefits.
Since Advocacy Day 2007 we have:
- Passed the ALS Registry Act in the House of Representatives by a 411-3 vote and secured the support of more than two-thirds of the Senate as cosponsors.
- Partnered with the Department of Defense as it has provided $5 million to establish the peer reviewed ALS Research Program (ALSRP), which is focused on translational research.
- Worked with Congress to appropriate an additional $3 million to continue the ALS registry at the CDC, bringing total federal funding for the registry to $5 million.
These are just a few of the accomplishments that advocates have achieved as a result of Advocacy Day and their year-round outreach to Congress.
Though it's too late to physically join us in Washington, DC this year, please join us in spirit as we turn fear into hope and hope into action. Together, we can create a world without ALS.
If you have any questions about this year’s National ALS Advocacy Day and Public Policy Conference, please contact the Advocacy Department toll-free at 1-877-444-ALSA or advocacy@alsa-national.org.
Check out some other Minnesota Chapter awareness articles.
See our In The News page for article about March of Faces Bannor. See how you can help get us another bannor to display at events!
Read about Julie Kottsick and her family, our ALS Across America Family. Use the links on the ALS Awareness banner at the top of this page to read other's stories. | |
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SHARING THE JOURNEY EDUCATION SYMPOSIUM | |
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KOLAR TOYOTA ALS WALLEYE TOURNAMENT | |
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KENT HRBEK OUTDOORS/TWINS BASS FISHING CLASSIC |
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WIN A CHANCE TO PARTICIPATE IN THIS GREAT EVENT!
Read More >
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BLACK WOODS BLIZZARD TOUR | |
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Make a meaningful difference! Serve a person with ALS and make life a little easier by doing common daily tasks. |
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WE HAVE NEEDS IN THE
FOLLOWING AREAS! |
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Byron, MN (near Rochester)
Frequency: Every other week, 1.5 hrs
Day/Time: Flexible
Job: Mowing with sit down mower |
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Coon Rapids, MN
Frequency: 1-2 per month, 1.5 hrs
Day/Time: Weeknights and weekends
Job: Mowing lawn |
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Montgomery, MN
Frequency: 1-2 days per week,
2-4hrs per visit
Day/Time: Flexible
Jobs: Cleaning, meals, and
visiting children |
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North Minneapolis, MN
Frequency: Once a week
Day/Time: Flexible
Jobs: Cleaning, errands, gardening & light maintenance |
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Osage, MN
Frequency: Flexible
Day/Time: Flexible
Jobs: Meals, household chores & visiting |
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Richfield, MN
Frequency: Once a month, 5 hrs per visit
Day/Time: 4th Thursday of each month
Jobs: Ride with person on Metro Mobility to support group |
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Richfield, MN
Frequency: 2-4 times per month, 1-2 hrs per visit
Day: Flexible
Time: Flexible
Jobs: Yard work & house cleaning |
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Stewartville, MN (near Rochester)
Frequency: Twice per month, 1 hr
Day/Time: Flexible
Job: Cleaning |
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Call Stephanie
Volunteer Coordinator
612-672-0484 or
email: stephanie@alsmn.org |
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For more on-going volunteer opportunties,
please visit the
Volunteer Page. |
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Make a general gift
to our chapter.
Your donation supports
The ALS Association's mission. | Donate Now >> |
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The ALS Association Minnesota Chapter
